000 02401pam a22003494a 4500
001 2004025487
003 DLC
005 20190729102919.0
008 041026s2005 mdua b 001 0 eng
010 _a 2004025487
020 _a0801881218 (hardcover : alk. paper)
020 _a0801881226 (pbk. : alk. paper)
035 _a(DNLM)101232809
040 _aDNLM/DLC
_cDLC
_dDLC
042 _apcc
049 _aEY8Z
050 0 0 _aRB140.3
_b.A33 2005
060 1 0 _aWE 250
_bA231d 2005
082 0 0 _a616.4/7
_222
100 1 _aAdelson, Betty M.,
_d1935-
245 1 0 _aDwarfism :
_bmedical and psychosocial aspects of profound short stature /
_cBetty M. Adelson ; foreword by Judith G. Hall.
260 _aBaltimore :
_bJohns Hopkins University Press,
_c2005.
300 _axviii, 342 p. :
_bill. ;
_c24 cm.
504 _aIncludes bibliographical references and index.
505 0 _aMedical aspects -- Psychological aspects -- The birth of a child : parent issues and outreach -- Organizations : from self-help to advocacy -- Lives today.
520 _aPublisher description: This landmark volume is the first to trace the exciting developments in the field of dwarfism research and treatment over the past century-particularly during the past fifty years. Dr. Betty M. Adelson, a psychologist, has unearthed and synthesized the most significant information about dwarfing conditions, from articles written a century ago to current books and specialized databases. Highlighting the outstanding contributions of Dr. Victor McKusick and several of his colleagues, Dr. Adelson reveals how dwarfism specialists have helped redefine the nature of medical care-transforming it from an authoritarian enterprise into a holistic, collaborative venture among physicians, affected individuals, and their families. The parent of an adult dwarf daughter, Adelson examines the social forces that affect the dwarfism community. She offers personal descriptions of the day-to-day challenges dwarf individuals face and portrays their accomplishments. Insightful and accessible, this work will prove a valuable resource for affected individuals, their families, and medical professionals-physicians, nurses, genetic counselors, social workers, psychologists, and medical students.
650 0 _aDwarfism.
948 _au172861
949 _hEY8Z
_i33039000748748
596 _a1
903 _a9205
999 _c9205
_d9205