000			02692cam a2200349 i 4500
001			9982028233901701
005			20240930153524.0
008			230923t20242024nyu b 001 0 eng d
020			_a1324065508 _q(hardcover)
020			_a9781324065500 _q(hardcover)
035			_a(OCoLC)1398567883
040			_aYDX _beng _erda _cYDX _dDYJ _dBKL _dOJ4 _dIMT _dOCLCO _dMiTN
050		4	_aR853 .H8 _bE45 2024
082	0	4	_a174.2/8 _223
100	1		_aElliott, Carl, _d1961-
245	1	4	_aThe occasional human sacrifice : _bmedical experimentation and the price of saying no / _cCarl Elliott.
250			_aFirst edition.
264		1	_aNew York, NY : _bW.W. Norton & Company, _c[2024]
264		4	_c©2024
300			_a355 pages ; _c24 cm
336			_atext _btxt _2rdacontent
337			_aunmediated _bn _2rdamedia
338			_avolume _bnc _2rdacarrier
504			_aIncludes bibliographical references (pages 323-339) and index.
505	0		_aIntroduction -- The honor code -- Tuskegee -- Willowbrook -- The hutch -- Cincinnati -- The unfortunate experiment -- The Karolinska -- Conclusion.
520			_a"Shocking cases of abusive medical research and the whistleblowers who spoke out against them, sometimes at the expense of their careers. The Occasional Human Sacrifice is an intellectual inquiry into the moral struggle that whistleblowers face, and why it is not the kind of struggle that most people imagine. Carl Elliott is a bioethicist at the University of Minnesota who was trained in medicine as well as philosophy. For many years he fought for an external inquiry into a psychiatric research study at his own university in which an especially vulnerable patient lost his life. Elliott's efforts alienated friends and colleagues. The university stonewalled him and denied wrongdoing until a state investigation finally vindicated his claims. His experience frames the six stories in this book of medical research in which patients were deceived into participating in experimental programs they did not understand, many of which had astonishing and well-concealed mortality rates. Beginning with the public health worker who exposed the Tuskegee Syphilis Study and ending with the four physicians who in 2016 blew the whistle on lethal synthetic trachea transplants at the Karolinska Institute, Elliott tells the extraordinary stories of insiders who spoke out against such abuses, and often paid a terrible price for doing the right thing"-- _cProvided by publisher.
650		0	_aBioethics.
650		0	_aHuman experimentation in medicine _vCase studies.
650		0	_aMedical ethics.
650		0	_aMedicine _xResearch _vCase studies.
650		0	_aWhistle blowers.
999			_c524455 _d524455